Lovely, dark, and deep

Teenager Viola Li and her sister Roz are selling bean buns at a science fiction gathering in Seattle when she suddenly collapses--she wakes up in the hospital to find that somehow she has developed an extreme case of photosensitivity (so bad that even ordinary lights can cause blisters), and somehow, in her senior year of high school, she has to craft a new life that will still include journalism school, activism, and the new guy who caught her as she fell.