genetic disorders in children

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genetic disorders in children

Raising a rare girl

a memoir
2020
"The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--.

Long for this world

2003
A Seattle doctor surrounded by newly rich dot-com owners discovers a potential cure for a children's premature aging disease--and aging in adults as well--and, yearning for wealth, fame, and a solution to family frustrations, wrestles with the ethical considerations of exploiting it.

Haatchi & Little B

the inspiring true story of one boy and his dog
Presents the true story of Owen, known to his family as "Little B," and Haatchi, an Anatolian Shepherd dog left for dead on a railroad who lost part of his leg and tail. Explores how the friendship that developed between Owen and Haatchi helped heal both of them.

Babies by design

the ethics of genetic choice
2007
Argues that parents should undertake genetic intervention to enhance their children's lives, outlining capabilities within genomic science, covering safety issues and questions of parenting and justice, and examining the religious implications of gene modification.

The boy in the moon

a father's journey to understand his extraordinary son
2011
Ian Brown describes his son Walker's rare genetic disorder and how it affects his life and the lives of the people who care for him, and details his journey around the world for answers about its cause and possible treatments and his final acceptance of his son's condition.
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